Ally SD- AuD/Awareness Network Manager
- ProfileWho Has Hearing Loss: I do
Hearing Loss Type: Progressive Loss
Hearing Loss Cause: Enlarged Vestibular Aqueduct
Device: cochlear
Welcome everyone! Thank you Cochlear for providing all of us with such an amazing community of friends:) So here's my story & how I got to where I am today:) I was 3 months premature and born with a moderate-to-severe hearing loss that wasn't detected until I was 8 years old. I wore hearing aids from age 8-23 and did amazing- unless someone asked me "what are those things on your ears?" I never thought twice about the fact that I actually had trouble hearing! We always assumed my hearing loss was due to being premature and having to stay in the NICU for 6 months- no one in my family has hearing loss, so we really didn't think anything of it until I started falling behind my peers in school and my speech, or lack thereof, went from "cute" to "not so cute" when I got into 1st and 2nd grade! LOL. So I never really missed a beat throughout grade school, high school, and onto college.
I have always loved sports and played just about all of them growing up and am happy to share that now that I have my ears back and literally my LIFE back, I've returned to the hardwood to play basketball, re-joined my friends on the softball field, continue to hit the road for frequent runs (especially in the park when the leaves & lively insects are out since I can actually hear them now!:), & I also still love to swim laps in silence just as I love to retire at the end of the day hitting the pillow surrounded by peace in quiet:)
In June of 2004 I was heading home from my 1st class of the summer semester between my 1st and 2nd year of graduate school when my life quickly flashed before my eyes and many things about who I "was" became part of the past- it was that very moment just before noon that I found myself among sirens, blood, glass, & tears as my car connected with another full speed, sending me to the hospital with a head injury among many other unforseen challenges of the next few years.
A a CT following the crash in '04 revealed that I was actually born with an inner ear malformation called "Enlarged Vestibular Aqueducts (EVA)." EVA is well known to be affected my head trauma or any other source of increased intracranial pressure. Without getting too "technical" EVA can essentially cause a progression in hearing loss if one already has hearing loss prior to trauma or increased pressure- how long and to what extent the hearing loss progresses is very hard to predict; however, in my case it took close to 1 year before my life went from never skipping a beat with my hearing aids to near silence. Throughout this year of progression I continued to try to go to school as I was working towards my clinical doctorate in audiology and was hundreds of miles away from home (I am originally from Ohio). As I am sure many of you can relate, words simply cannot describe how scared I was for my future, my relationships with family & friends, my sense of self...the list goes on and on!
When you go from a world of sound and never think twice about it, hitting rock bottom in a foreign land of pure silence is nothing short of what felt like an honest disaster filled with endless worry! So like most people who ride the waves of human emotion and eventual acceptance, I finally made my way out of this "black hole" thanks to my family and lifelong graduate school friends who essentially looked me in the eye and said, "Ally, there is only one thing you can do if you want to continue on with school in pursuit of your lifelong aspirations and dreams- you know more than anyone that we are fortunate to live in a world where at this day in age there is hope on the horizon for those living in complete silence or close to it- get a cochlear implant...you have absolutely NOTHING to lose!!"
So...on Oct. 19, 2005 Dr. Robert Labadie implanted my right ear at Vanderbilt University Medical Center and on November 3, 2005 my right ear (now formally known as "CI Sony":) was officially re-born and welcomed back into the world I know best...a world full of precious sound:) It was absolutely positively amazing! It didn't take long for CI Sony to get used to "her" new sound which I contribute to the very short window of time that I had to wait between silence and the activation of my right ear- so my brain remembered very well what it "used" to hear with my hearing aids before the car accident...this played a HUGE part in why my world started to sound just like I remembered hearing it within weeks of activation.
I also live a rather unique life as both an audiologist as well as a bilateral CI recipient in that I have all the aural rehabilitation resources along with the priceless advice, support, & never ending encouragement from all of my fellow colleagues and friends who also happen to be audiologists and otolaryngologists - so my magical ears are kept in constant check, anything less than their absolute best is simply unacceptable! :) I esentially "practice" perfecting my ears 24/7, personally holding them accountable for making sure they're precisely "tuned" and always putting forth 110% every single day:)
The amazing success of my right ear far exceeded my expectations- in January of 2006 after continuing to wear a hearing aid on my left ear to stimulate my hearing nerve for the "future," I literally looked myself in the mirror one night feeling "bad" for my left ear as it wasn't able to experience the day-to-day miracles of learning new sounds and celebrating the many leaps and bounds of success and sincere "relief" that my right ear had just been blessed with...I simply couldn't fathem living the rest of my life without giving my left ear that same opportunity!
So we started the insurance auth. process once again in January 2006 incuding a personal letter with heartfelt words from my point of view, then we waited...and waited...after 2 months of nothing I started calling (yes, using my cell phone with "CI Sony"- NOT the relay service!:) We finally got an answer in late March- they had approved:)On June 29th, 2006 my new left ear (now formally known as "CI Sydney":) was "placed" and 5 days later turned on! WOW- there was a REASON we were all born with TWO ears!
"CI Sony" was definitely the light of my life, providing me with endless sweet sound day after day...but "CI Sydney" rocked my world! It just so happens that my left ear ended up being my "better hearing ear"- definitely not real evident by the looks of my pre-implant audiogram! "CI Syd' has simply placed me back into a world of surreal surround sound and with both "CI Sony" & "CI Sydney" back on "the air" my life has come full circle and continues to travel full speed ahead:)
As I reflect back upon my journey out of silence and the many lessons learned, I can say for sure that everything in life truly happens for a reason. My journey lead me to discover more of who I really am, it forced me to find patience within myself and others as well as acceptance for those things we cannot change, but rather love. My journey out of silence has filled my heart with strength, teaching me the true meaning of patience & perseverance thanks to an abundance of love & support :)
