Brandy H, Awareness Manager

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Location: Jacksonville, Florida

Who Has Hearing Loss: A child

Hearing Loss Type: Progressive Loss

Hearing Loss Cause: Enlarged Vestibular Aqueduct

Device: cochlear

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My Story

We were devasted to learn that Dylan had a hearing loss when he failed his newborn hearing screening in Florida in 2002.  I don't even remember the drive home that day from the audiologist.  I do recall that it was a typical day for her- but not for me or my husband. 

 

I remember my daughter, Megan, who is 15 months older than Dylan, sitting on my lap in the "booth" playing with a toy.  "I'm a Little Teapot" was playing and Megan just kept playing with that toy in her hand.  She didn't look to the sound.

 

What a kick in the gut.  Dylan had a hearing loss and we put hearing aids on him-  but how could we miss my daughter's hearing loss?  What kind of parent was I to not notice an 18-month-old not talking???

 

Fast forward to 2004- both Megan & Dylan received their first Nucleus Cochlear implant & within 5 months received their second.  They both play basketball, dance, sing and are in mainstream public school.  Megan even plays the piano.

 

Thanks to Cochlear Americas, the Clarke School in Jacksonville, the staff at Cunningham Creek Elementary and the many medical professionals along the way, our children are living every possible opportunity.

 

I am here to offer you resources and hope.

 

Direct:  877-742-1122

Check out Megan and Dylan's profile on here too.

 

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Blog Entries
3 Weeks Ago
Hello Friends of Hearing Loss Assoc of America, The Hearing Loss Association of America is proud to present live Webinars (previously called Webchats)...
One Month Ago
  The recording of the Cochlear Nucleus 5 Upgrade Webinar with Chris Smith and Jace Wolfe, Hearts for Hearing, is now available! If you were unable...
One Month Ago
 Goals and Activities for Improving Teenagers' Listening and Spoken Language Skills (Professionals)Presenter:  MaryKay Therres, M.S., CCC-SLP,...
One Month Ago
 Correction on the time! Join Cochlear America’s President Chris Smith and Jace Wolfe, PhD, CCC-A, Director of Audiology, Hearts for Hearing,...
One Month Ago
 While on vacation last week, both my bilateral Nucleus children exited the Tower of Terror ride at Disney's Hollywood Studios park when they were...
2 Months Ago
  Here is the link to learn more about the date & time: http://www.cochlearcommunity.com/services/feb_webinar.php  Info about...
2 Months Ago
 Click on the link to see the photo gallery of  a bilateral toddler Nucleus recipient and read the article about the bionics, "Merging Man and...
2 Months Ago
 Click on this link & scroll to the bottom of the webpage.  There you will find great info that literally walks you thru all that the BP100...
3 Months Ago
 Click here to learn: http://products.cochlearamericas.com/cochlear-implants/cochlear-nucleus-system-advantage  
3 Months Ago
 Cochlear has created an on-line tool for you new Nucleus 5 users to be able to navigate through your Remote Assistant.  Here you will be able...
3 Months Ago
 Follow this link to Hallmark.com & listen to the 12 Sounds of Christmas.  You will need to roll your mouse over the bulbs in the e-card. ...
3 Months Ago
 The Ochsner Clinic in New Orleans held their annual Celebration last week for all their cochlear implant recipients.  There were "seasoned...
3 Months Ago
 The Ochsner Clinic in New Orleans held their annual Celebration last week for all their cochlear implant recipients.  There were "seasoned...
3 Months Ago
 Don't miss this incredible story that aired on the Today Show: http://www.msnbc.msn.com/id/21134540/vp/34377632#34377632
4 Months Ago
 I will be attending this workshop with my family & think it's a great opportunity to meet some of you Jacksonville Community Members that I...
4 Months Ago
 One of our very active Cochlear volunteers, Tina, is highlighted in this video with her son, Karsen (a bilateral Nucleus Freedom recipient) and her...
4 Months Ago
 Although the holiday is full of prayers and thoughts of Thanksgiving, we could all use a little laugh sometimes.  
4 Months Ago
  This time of year is when I reflectOf the days in our lives that were not so perfect  When our children couldn’t hear the sound...
4 Months Ago
  We give thanks for unknown blessings already on their way. ...
4 Months Ago
The Awareness Managers had a meeting this week in Chicago and tonight, my colleagues, Rene', Mark and I went to dinner to discuss our next day's...
5 Months Ago
Check out the easy to navigate new look of the Cochlear Americas website.  You can click on this...
5 Months Ago
Cochlear has a Facebook page and we would love for you to be a "fan"! Direct...
5 Months Ago
Don't miss this moving story.  When:  Sunday, October 18th  (yes, this coming Sunday)Where:  on ABCWhat:  Extreme Makeover...
6 Months Ago
To read the article, click here: http://cbs4denver.com/health/cochlear.hearing.surgery.2.1189043.html  To see the video, click...
6 Months Ago
The CR110 is the industry's first 2 way remote control.   What can you do with it? -Activate telecoil (if you prefer not to use the...
6 Months Ago
Join Cochlear America’s President Chris Smith as he introduces the Nucleus 5 System--the only cochlear implant system that offers the smallest most...
6 Months Ago
What is this new AutoPhone Feature? -Industry's first and only automatic phone detection through auto telecoil  What is the...
6 Months Ago
Do you have a specific question about the NEW Nucleus 5 Cochlear Implant System?  Visit our Cochlear Message Board and post your question there. ...
6 Months Ago
What you've all been waiting for...... http://tinyurl.com/m32nj2  Happy Happy!!!!
7 Months Ago
7 Months Ago
I know a secret.
7 Months Ago
When my daughter was first activated with her CI when she was almost 4, we left the center in our van.  She said, "w at?" (meaning What's...
7 Months Ago
This song really SCREAMS the purpose of the Cochlear Community Website.  Take 3:22 of your life and understand how we want to "Send It On" to...
7 Months Ago
If you want to learn more about cochlear implants, you can listen or request a transcript of a recent webcast entitled "Cochlear Implants....Hope after...
7 Months Ago
Most all private insurance companies cover the cost of the cochlear implant (Baha implant too) and the surgery, depending on the insurance company. ...
7 Months Ago
Read more: http://hlaa.convio.net/site/MessageViewer?em_id=6361.0&dlv_id=13901 There are MANY insurance companies that have made bilateral...
8 Months Ago
http://harveyshear.blogspot.com/ I just posted photos, videos and some fun from the Northeast Cochlear Implant Convention.   Check it out!
9 Months Ago
My son, Dylan entered a raffle at school and won a free surf lesson with his teacher.  My daughter, Megan, had the same teacher last year, so last...
9 Months Ago
Check out my daughter, Megan, playing "Puff the Magic Dragon" in this video of her latest piano recital.  Megan has bilateral cochlear...
9 Months Ago
Do you have a cochlear implant?  Are you energetic, dynamic, full of personality and focused enough to work independently?  Do you have the ability...
9 Months Ago
I just created a new group called Cochlear Moms because it can be found on the Cochlear Community.  However, please read this info about the...
10 Months Ago
I have my privacy setting set to "open" which allows anyone to send a message to me or post back to me on my blog.  This is my personal choice...
10 Months Ago
On May 14th, Clarke Jacksonville Auditory/Oral School held the "Celebraton of Sound" breakfast to create awareness about hearing loss, cochlear...
10 Months Ago
Looking to make a diffference this month? I will be giving a 5 minute advocacy speech at the Clarke Jacksonville Celebration of Sound breakfast this...
11 Months Ago
View photos of Celebration on this web link: http://floridateamharvey.shutterfly.com/
11 Months Ago
Here is a weblink for you to see of my daughter, Megan talking on camera at the Cochlear Celebration in California.  I did not learn about this video...
One Year Ago
We have a Baha group on this website that currently has 76 members.  If you have a Baha implant, your child has a Baha implant or you are just looking...
One Year Ago
Hi All!  I just returned from a whirl wind vacation.  It started in Anaheim, California (I was not on vacation, but working) at the Cochlear...
One Year Ago
I am so excited for Celebration I could burst!  I hope to see you all there & if not, watch my posts.  I want to share some of the highlights from my...
One Year Ago
If you are an adult who is impacted by hearing loss and you can no longer function as you used to, you are on this website looking for some support,...
One Year Ago
Have you let your children play the Kaci Games that are here on the Community in the services section??  Better yet, have you tried to play the games? ...
One Year Ago
Have you heard of the "Connect with Your Community" workshops that we have been holding in cities all over the United States?  Well, let me tell...
One Year Ago
Did you know that the Cochlear Awareness Network has written values that are so important to us?  I thought I would share because when you receive a...
One Year Ago
On February 23rd, I uploaded Dylan's basketball game of him scoring 2 points in under a minute.  So far, I have had many messages sent to me about it &...
One Year Ago
I just left Boston where it was 31 degrees and flew to Miami where it is warm, breezy and oh so nice!  Many people ask about the Awareness Manager position,...
One Year Ago
So, you've been wondering how a child with cochlear implants performs during sports? Here is our son, Dylan, age 6, playing his first season of...
One Year Ago
Last week I had the pleasure of talking with a group of our Nucleus cochlear implant recipients while I was visiting Hartford, Connecticut.  While there,...
One Year Ago
Hello Everyone! Time sure flies!  I have returned from Colorado refreshed with all the exciting new initiatives from Cochlear Americas.  It was wonderful...
One Year Ago
The Altanta trip was fabulous as Scott Rinehart & I were able to connect with Georgia Peach members & learn about their exciting retreat this summer....
One Year Ago
I just updated my profile, so read it if you haven't.  I made it a little more interesting so people knew what I wanted to offer. Today I will connect with...
One Year Ago
I recently heard this from someone and thought it was worth sharing. Our life is like a car.  We are in the driver's seat and have the control to go in any...
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