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Ilene - Cochlear Awareness Network Volunteer

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My Story

Five years ago, on what was an ordinary night, I went to bed only to awaken to a problem that would forever change my life.  I was unable to hear on one side and the other had lost a significant amount of hearing.   Many doctor appointments.  Not too many answers -- it was random - won't happen again - one in a milllion - blood tests, medications, but still no hearing.  Slowly I embarked on hearing aids.  They helped but I was still struggling as it was not so much the volume I needed but the clarity of what was being said that eluded me.  

 

Almost three years ago, I awoke from an uneventful night to once again lose hearing.  The good ear was now a bad ear too - sound was gone and hearing aids were not able to bring it back. More drugs, high doses of steroids millions of hearing tests - by now I had memorized the word lists.  But nothing changed.  Depressed, angry, frustrated...not a good combination...I wondered how I was going to adjust - would I never again hear my children tell me they love me, would I not hear the sounds of everyday life or speak on the telephone?

 

I changed doctors many times in the last three years and here and there they would mention cochlear.  In November 2009, I was implanted with Nucleus 5.  It is wonderous to ease back into the sounds of life, to have conversation -the smile has returned to my face and surely to those around me.  The hearing on the other side continues to diminish but isn't ready for another CI even though I am.

 

If there is one thing I don't like - it is taking the CI off at night - the quick thrust back to silence brings a bit of anxiety but surely keeps me grateful for the opportunity to hear again.

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Blog Entries
Roller Coasters
2 Months Ago
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Heart of Hearing
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3 Years Ago
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Last Weekend
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 When I lost my hearing I felt disconnected to the rest of the world.  It took much time, soul searching and tears to seek out a cochlear...
730
3 Years Ago
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Wondering if anyone is planning to attend the Hearing Health Seminar in Westchester NY November 19th.  Hilton Westchester Rye Brook699 Westchester...
Fire Safety Tips
3 Years Ago
  FIRE SAFETY TIPS  Here are some fire safety tips for those with hearing loss and those with cochlear implants who typically cannot hear at...
  Traffic was heavy and I was 45 minutes late for my appointment.  Normally, I would color my hair first then have it cut.  Being late it...
Days of Awe
3 Years Ago
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What Can I Say?
3 Years Ago
  It has been a very long and extremely stressful week.  I had a big meltdown earlier and chose that time to read through the postings on...
  Over the weekend Mr. Wonderful and two friends of ours went to Atlantic City to celebrate my birthday.  There was an incident in the hotel...
Not Listening
3 Years Ago
  A number of months ago, I enlisted the help of a very sweet college girl to teach me sign language.  She has tremendous patience, especially...
  I have noticed many different titles for Cochlear volunteers. Cochlear Awarness VolunteerCochlear AmbassadorCochlear Network...
  A recent study conducted by NYU School of Medicine in NY found that exposure to smoke appears to affect the ear's delicate blood...
  Have you seen these people?  They were walking around for many hours talking and listening to each other.  At times, two of them heard...
Losing It
3 Years Ago
  Some sounds are plesant reminders of things we have long not heard.  Some sounds were uncomfortable before losing hearing and are still not...
Home Depot
4 Years Ago
 Home Depot is not one of my favorite stores.  I have been redecorating one of the bedrooms in the house and needed a new ceiling fan.  I...
Frustrating
4 Years Ago
 I have noticed more and more lately that people are posting their blogs on many boards at the same time.  We all want our posts to be read and I...
  A bit delayed due to weather and schedules, I had my one year evaluation last week.  I so would like to have one of those sound booths in my...
Spirit
4 Years Ago
 A new year is upon us.  A time when people vow to lose weight, stop smoking, change jobs, be more tolerant, etc.  A time for many to reflect...
Moving On
4 Years Ago
 November seems to be a big month for CI anniversaries. I too am celebrating the one year mark.  Fought many health battles this year and they at...
Life is about steps forward and often steps backward.  I seem to be in a backward motion more than I am comfortable with.  I simply cannot stop...
Congratulations!
4 Years Ago
Congratulations to Daniella - our Nucleus 5 Community Hero for her strides in music!  Way to go!
For now...
4 Years Ago
Well at least the room has stabilized...for now.... Vertigo seems to be a continuing issue for me especially the last two months.  In June, a...
Quiet
4 Years Ago
I still tend to avoid large gatherings however, the hosts are good friends and I didn't want to insult them by not attending.  There were 20 of us...
Making New Friends
5 Years Ago
It was great to attend and help out at the Cochlear seminar on Long Island last week.  I had the opportunity to make new friends and meet Parri! ...
Photo of me and Mr. Wonderful.....  
Mr. Wonderful
5 Years Ago
His father didn't care for my mother and the feeling was mutual. We got married anyway.   Not one of my friends ever thought I would settle down...
Spinning
5 Years Ago
As I explained to the doctor, it's like my old television.  The one that had vertical and horizontal dials.  I need my picture adjusted. ...
E Day
5 Years Ago
It is hard to believe that 90 days have passed since A Day.  I have blissfully enjoyed the ride back to hearing.  I like being able to hear what...
Guilty
5 Years Ago
Ok I admit it...when the first notice came I threw it away.  A few months later when the second notice came it was shortly before my CI surgery and the...
I hear you..
5 Years Ago
Having been unable to hear, I never had speakers for my computer.  Hungry for all sound since my CI, I excitedly bought speakers and quickly turned them...
Hurry Up and Wait
5 Years Ago
I went for my three month post implant check up.  Sitting with the md I purged my litany of questions/thoughts and waited to hear his response. ...
Photos, Files & Sounds