OperaJoyce

- Blog Posts

Living in silence

April 02, 2010
posted by  OperaJoyce


Ellen and all who are interested, I am not enjoying not hearing (understatement) but know I will get through it. I think it bothered me more today at lunch than it has before. The place we went is a place we go at least once a week, a lovely spacious room where our "permanent" table overlooks a monstrous oak tree under which I grew up. The waiters are all very friendly and we joke a lot; I missed that. It just seemed really weird. I know that next week it will be better since I will be expecting the weirdness. It doesn't bother me so much at home because Bill is so good about writing things down; nor does it bother me much out of doors. I had a strange experience yesterday. I was watching bubbles while the water was running hard into the sink and I could hear the water running! I then shut my eyes and I could not hear it. Evidently my brain was responding to the bubbles. Hopefully that retained memory will help me when I become activated.

 

Email is a real blessing while I am in this situation. I mail my family, my friends, and this wonderful community. Another big advantage of the computer is visiting with my family in person. When one of my children is here and we want to have a long conversation, we sit at my computer, he or she type while I read and I can answer. And to think I really did not want a computer; told Bill no,no,no, a thousand times. He finally almost made me learn because he gave me one, the dog. But where would I be now with out it. Thank you Bill.

 

If I think of anything more, I wll add to this blog later. The main thing is that the surgery is over and I will be bilateral. If I had known how weird this would be, I would still do it the same way. It is so exciting to think that I will be able to hear out of both ears.

 

Pink dot, My activation is not for 4 1/2 weeks. Groan.

 

Thanks to all.

Bookmark and Share

Comments

 
Melissa - Baha Volunteer

April 02, 2010

When my grandfather suddenly was deaf, he carried a pad of paper and a pen with him. He was not shy in telling the other person, "I want to know what you have to say." -- Of course, he would haul me to where ever he wanted "ears." Today when I think how handy a laptop would have been, I just groan. -- keep on trying one thing after another to all but force people around you to hear for you, and write. (A lot of the time I left out a, an, the, and I assigned numbers to the various people around, and saved a lot of typing.) One great thing is the days will pass quickly, and be over. Activation, mapping, coordinating sides ... all to hearing again.
 
Ilene - Cochlear Volunteer

April 02, 2010

Joyce, one of the most frustrating experiences for me when I lost my hearing, was to stand before the sink with water running. I knew the sound it would make but heard nothing. Each day I would turn on the water and try to hear the sound but there was none. I wanted to hear it so very badly. One day, I swore I heard it but I didn't. Our minds are way more powerful than we even know. It is that which will help you to re-hear so many sounds. In my waking hours I stand before the sink with water running and yes Joyce, I DO hear the water running! You will too! Ilene
 
PinkDot

April 03, 2010

Sorry about missing sounds! I don't blame you for it. On a few occasions, I find myself hearing the voices from the TV even with the sound off while reading the captions. I asked my hearing family if the sound is somehow "leaking" from the TV, but they insisted there is no sound. I realize that it must be my brain "filling-in" the sounds that did not exist. Our brains are an amazine machine! I am sure those 4 1/2 weeks before A-day will go by quickly. Have you tried playing games with your kids, grandkids or Bill? With games, you can get some interaction without really having to listen to what they are saying. Hope this helps! :-)
 
Karen P

April 03, 2010

You have come so far Joyce and the best is yet to be. Focus on getting a full recovery this month because when you do get activated, watch out!! You will be very busy :) You will start to hear things you can't begin to imagine, things you forgot you hadn't been hearing and it will be so wonderful.
 
Daniela

April 03, 2010

Just think how quickly time has flown since the surgery! It won't be long until A-day. When the silence gets a bit much for you, try doing something that doesn't accentuate the missing sound - like reading a book, or doing a crossword puzzle. It has helped me at times. If you want to read something funny, take a look at this article from the Washington Post: http://www.washingtonpost.com/wp-dyn/content/article/2006/06/14/AR2006061401933.html Josh Swiller describes silence so beautifully! And it's an entertaining read too.
 
MargoK-Cochlear Volunteer

April 03, 2010

When I first became deaf in 1977 and my world was silent except for my tinnitus, communication was exceptionally challenging. It took some getting used to. I thought it would be Heaven before I would hear. I was wrong. After 11 years of silence, I had ci surgery. Although that month of waiting before activation seemed long, I had hope of new tomorrows of sound. Today,almost 21 years later, I'm living my dream of hearing with 2 ci ears. I truly understand your frustrations of living in silence Joyce. Remind yourself that it is only temporary until your bilateral activation. Keep a pad of paper and a pen on you to help with communication. That is great that you are using your computer as a communication tool as well. You have such hope of new tomorrows of sound and improved hearing with your bilateral cochlear implants. This is a time of recuperation and storing up lots of energy because once you are activated to the world of sound, you are going to have sound filled days. with double ci joy, Margo
 
Alan

April 03, 2010

Hang in there, Joyce. You have not long to wait for your new awakening. Your experience with the bubbles is what is known as an audio hallucination; the brain is capable of supplying an audio accompaniment to a visual simulation. Neat, huh? Alan
 
Corgijack

April 03, 2010

Daniela: I went to search for the Wash. Post article you referred to and unfortunately the Archives go back only to 12/22/07 - any hints of how to get back to June 14, 2006? (no, I'm not paying the Post to do the research and sending he article ! - maybe you have it on hand and could copy it here?) Sally
 
Karen K.

April 03, 2010

You can access the Washington Post 2006 article by registering on the website. Once you have a user id and password, then you can access the link to the Josh Swiller article. On the other hand, if you have Facebook registration, you can sign in that way. http://www.washingtonpost.com/ac2/wp-dyn?node=admin/registration/register&destination=login&nextstep=gather&application=reg30-opinion&applicationURL=http://www.washingtonpost.com/wp-dyn/content/article/2010/04/02/AR2010040201758.html?nav%253Dhcmodule
 
CherylO

April 03, 2010

Joyce, Hang in there! It must be very frustrating having both ears done at once and not being able to hear until "A" day. It will be here before you know it and it will be such an amazing experience for you. Try to stay busy until then. Reading helps! Cheryl
 
barbw

April 03, 2010

Joyce~ It sounds like you have a lot of support from your family and thats the best! I can't imagine having no hearing but your A-Day is not that far away. Mine was 4 weeks after the surgery. Best to wait and let your head heal and then when your brain starts to work overtime you will be more ready.... Keep us posted. Barb
 
Shelley E -Cochlear Volunteer

April 03, 2010

Joyce, I hope the next 4 and a half weeks of silence go by quickly. You have a lot to look forward to. Shelley
 
Daniela

April 04, 2010

Hmm ... sorry about that link not working for you, Sally. Doesn't require me to register at all - not sure why. The article is called 'Turning up "American Idol"" and it's by Josh Swiller, a CI recipient who longed to hear American Idol during his years of silence. He says: 'Silence has a bad rap: We view it as an absence, a lack. But when you really step into it, you see that it's no such thing. Details you barely noticed before expand to take the place of noise. The coolness of a doorknob, the smell after a spring rainstorm, the insanity lurking in the eyes of certain height-challenged movie stars -- all become astonishingly apparent. And in quiet is a peaceful remove. While sound puts you at the center of your own swirling cosmos, sight lets you observe things from a distance.'
 
Lissa

April 04, 2010

I cannot imagine living in silence for 4 1/2 weeks! It must be hard and I hope it goes by really fast for you and you'll be activated in no time!! It'll be worth it in the end!!
 
Corgijack

April 04, 2010

Lissa: Try it for four YEARS and trying to find a job after being fired because of the sudden hearing loss - you'd be amazed at what we are capable of - maybe this is one reason why I still prefer while being out in nature and especially the mountains to turn off the implant and just enjoy the silence of snow with my eyes!! No ears needed. Sally
 
Lissa

April 04, 2010

Yeah I was saying it must be hard. I was not saying that it is easy to cope with..
 
Ann in Colorado

April 04, 2010

Joyce, I have been thinking of you every day since your surgery. I know it can't be easy going without any sound day in and day out for a few weeks, but I know in my heart that you've made a very, very good choice by going bilateral. I went the sequential route, so I didn't experience what you're going through, and my experience of total deafness is limited only to when I am sleeping, in the shower, or drying my hair. Soon this will be your experience, too, and you will be enjoying surround sound with your two CIs. The brochure that Cochlear recently posted about bilateral hearing really sums up my experience: the head shadow effect (for localization), bilateral squelch (which helps the brain cope with background noise), bilateral summation (or what I think of as 1+1=3)--the whole kit and kaboodle is wonderful. I am hoping the time will fly by for you so that soon you will be activated and sound will come alive for you again! In the meantime, I'm so glad that you have the support of your family--both your biological and Cochlear families! --Ann
 
tee11

April 04, 2010

Joyce, we all understand. Wishing you happy hearing.
 
grammaK

April 05, 2010

Joyce, my activation was 4 weeks after my surgery and I had virtually no sound either except for occasional very loud sounds, like a door slamming. It's hard to have patience, but the goal is getting closer day by day! Hang in there :) ~Karen
 
Rita

April 05, 2010

Joyce, "good things come to those who wait", it will be so worth it and time will fly by for you.
 
Iola

April 06, 2010

When the silence ends, the world of sound will burst forth. May you be surrounded by the loveliest of voices and joy unspeakable. You have come this far with determination and enthusiasm. As the days continue to go by, may your spirit soar with the eagles. Your reward is close at hand. God bless you, Joyce. Peace and love, Iola
Previous   |   Next