Parri T - Consumer Engagement

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My Story

Hi!

I received my first CI in 2006, 5 years after I knew I was a candidate. My progressive hearing loss was first diagnosed as mild/moderate at the age of 10. In college I bought a hearing aid, hated it, put it in a drawer and then “lost” it. By my early 30’s I had a severe/profound hearing loss, worn bilateral hearing aids for 6 months, put them in a drawer and embraced the deaf world. I lived in silence, returned to school and worked with others who are deaf and hard of hearing. During an internship I had the pleasure of working with a woman who had her cochlear implant for just 6 months. Seeing her reactions to the world around us left me speechless; I was in awe of everything she could hear. I decided to look into getting a cochlear implant. The day I was activated birds, cars, plastic bags, microwaves, laugher, everything I'd been missing came back all at once. It’s been a wonderful, amazing and noisy journey I wouldn’t trade for anything. I didn’t think it could get any better. Well….

This Fall I was in a sports bar/restaurant with a group of people a friend of mine had gotten together.  These were some pretty cool people, a Sierra Club attorney, ER nurse, VP of a local company, to name a few.  The night started with just 3 of us and grew to 8 by the time supper came.  I saw my self withdraw as more people showed up.  I couldn’t hear the conversation because everyone was on my deaf side.  It’s easy to position yourself when a group meets at a restaurant for dinner but near impossible to gracefully figure it out as people trickle in.  Instead of moving I gave up.

The next day I walked in to my Drs Office and proclaimed it was time to go bilateral.  I swear after the shock wore off a little they couldn’t grab the calendar to schedule me soon enough. January 10, 2011 was my surgery date and due my travel circumstances I was activated January 14th.  I was amazed at how quickly I adapted to hearing in both ears. That weekend I felt off balance when my batteries went dead in my new ear. Shoot, with two ears I can ear the stereo in the den and the radio on my computer when I’m in the hall, never knew that before.  I can hear my voice when I’m on the phone, trippy I tell you.  Just like with my first CI now having my second I had no idea how much I was missing only having one CI.

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Blog Entries
Marine Maj. Gen. Bob Hedelund, commander of the 2nd Marine Aircraft Wing, admitted that the podium at a conference on cochlear implants in Washington, D.C.,...
Introducing the Cochlear™ Nucleus® 6: Everything we’ve learned over 30 years makes it simply smarter. Our most powerful microchip yetThe...
 This past weekend our summer interns (me too!) enjoyed the Happiest Run on Earth, The Colorado Color Run!  Wearing the Aqua Accessory, their...
 In case you missed the Today show segment they aired a live activation from U Penn. WOW!
What a great day!
One Year Ago
On Saturday the International Hearing Dog hosted it's annual Walk, Run & Wag 5k in Denver.  There was a great turnout of runners and volunteers...
If you're looking for a fun opportunity to raise awareness and spend time with 4 legged canine children (yes, you can bring the 2 legged ones too) join...
OperaJoyce
One Year Ago
Thank you Rusty for letting us know.  Many of us on the Community have crossed paths with Joyce in person, on line or both. I am blessed for having...
 We are all geared up for Cochlear Celebration 2013 in San Diego, CA, February 14-17, 2013! Celebration is a big part of our Cochlear Family, and we...
 Are you interested in learning more about cochlear implants?Would you like a chance to meet the local surgeons and audiologists?Do you have...
For all you Twitter folks follow @Swedish today or take a look at all of their tweets from today.  They're tweeting step by step a CI surgery...
 We're coming to town! If you or someone you know is struggling with hearing aids please join us 9/29 for an information morning.  At this...
 FREE Seminar! Are your hearing aidsno longer enough? Can you only hear from one ear, or do you have malformed ears or chronically draining ears?...
 Our very own Nancy Ryan is featured in the September issue of West Hartford Life newspaper.   When you have a moment please read the...
 Labor Day weekend and what a weekend it was.   Over 60,000 people descended on Burke Lakefront Airport for a fun filled weekend of aviation...
 I’ll be in New York next week hosting a series of workshops open to anyone interested in learning more about the Nucleus Cochlear Implant System...
If you missed the CT Cochlear Awareness Network chapter meeting then you missed THE event.  Nancy has taken the helm and organized a group in West...
 Hi y'all,  If you're in the area please stop by. Thursday June 28: 6:30 - 8:00 PMBarnes & Noble Cafe'1565 Niagra Falls...
 A New Hampshire recipient inspired Marvel to create a new comic book character.  Gosh Batman did you know Blue Ear has super sonic...
 Megan Dalke made the local news talking about her cochlear implant experience and the upcoming HLAA Walk4Hearing in Hartford, CT on June...
 Hi y'all,  If you're in the area stop by.  Tuesday 5/15 6:00 – 7:30 PM Cochlear ChatBarnes & Noble CaféBrass...
 I’m having a fabulous day!  I woke up to Happy Birthdays wishes via text, email, and FB messages.  As I opened one e-card I started...
It's MI in May
2 Years Ago
 Interested in  Learning more about the Cochlear Nulcues System?Connecting with other Cochlear implant recipients?Talking to your local Cochlear...
 What a great few days in PA last week.  I started in Cranberry Township and wrapped up Saturday in Harrisburg.  Along the way I had a chance...
 I ran across a great article about a cochlear implant recipient who has upgraded 4 times since his first CI and recently went bilateral! ...
 We had a fabulous time at the NY Women’s Expo in Albany.  Pat, Guy, Kassey, and Joe were on the ball talking to attendees as they passed by...
 Please join Cochlear Americas for an enjoyable evening discussing techniques and technologies available to help you make the most of your cochlear...
Sam Bidwell, Mathlete and super swimmer has had a heck of a Spring.  Oh, and he's a bilateral cochlear implant...
I want to say thanks to Melissa T and Nancy R for sharing their experiences at last night's event.  We had a great turn out. Everyone learned...
 Olivia, Iraida, and I had a wonderful time Saturday at the 2012 Newport Health and Wellness Expo.  The Hotel Viking was a beautiful venue to host...
 Cochlear™ Chat Thursday March 1st6:00 – 8:00 PMHartford Hospital80 Seymour Street  Dining Rooms A, B, & CHartford, CT...
 Meet the 2012 Graeme Clark Scholarship Winners! Peter "Campbell" SodeAnna DaviesChristen NelsonSarah Ovresat Meet the 2012 Anders...
  5425var s431585 = new...
 The MI crew (Liz, Margo, and Maureen) with some support of the zoo (Amy, Gina, Nicole and Parri) had a fabulous Mid Mi Women's...
Looking Back: A-Day
3 Years Ago
  5359var s213636 = new...
America the Beautiful - National Parks and Federal Recreational LandsPass - Access Pass - FREEThis is a lifetime pass for U.S. citizens or permanent...
 Looking back has give me an opportunity to take a second look at the 1/11/11 post op look. It's lovely. 5335var s941829 = new...
Continuing our look back at by bilateral experience I had a few thoughts the Friday before surgery. 5212var s870971 = new...
Check out what Esther Kelly is doing in Feb! If you don't know her Esther is a fabulous person and a Cochlear volunteer for years. You're...
Can you believe it's been a year since my bilateral surgery?  There are number of folks I've been talking to about why and what's it like...
 For the past few days nothing was sounding right.  I wasn't balanced. My right ear was much louder that my left so I reached for the remote...
Thanks Sharon for passing along the information.  posted by SharonC Cochlear Volunteer- Ambassador I am so excited about this.  I...
 If you've been following me for awhile you know I have a relationship with my iPod.  I love music and here's an opportunity to share your...
 The holiday season is about to gear up full speed and for many it’s the first time you’re hearing the sounds of the season.  What a...
 There are days I get yakking away and before I know it the dreaded red battery is on my screen.  I’m down to 20% battery life left!  I...
 A recent recipient was kind enough to share his daughter’s essay and I was so moved we asked Alexandra if I could she her essay with...
 I had such a fantastic time with everyone on Saturday.  Connie and Mike made the recipient lounge look fantastic.  Molly, Kiersten, and Mike...
 This past weekend was the 10TV Health and Fitness Expo in Columbus, OH.  Awareness Network volunteers Dan N, Connie J, Lisa B, Meredith K, and Jim...
 iMac: $1,200iPad: $700.00iPhone: $200.00Figuring it all out: Priceless If you're a member of the Windows/Microsoft Office world life seems...
 posted on: July 16th, 2011Thomsen Young compiled a handy list of 8 top Android apps for deaf and hard of hearing consumers:Handcent SMS - An excellent...
 If you did no worries you can watch it today!  Hear with Two Ears - Bilateral Cochlear ImplantsDid you miss the recent bilateral webinar with...
 Saturday was a great day in St Louis, MO where the Cochlear crew hosted a Hearing Health Fair.  Over 80 people attended, learned about Cochlear...
 When I lost my hearing I offered my music collection to friends and neighbors but still had a number of CDs left, over 100 to be more specific. ...
 Hi y’all, it’s been awhile since I’ve given a bilateral update.  Last month I went in for my 3-4 month post op visit and it was...
 Nucleus 5 Upgrade Video Contest – Win a FREE iPad!Cochlear™ wants to hear from you.  Share your Nucleus® 5 Upgrade story with...
 Regal, Cinemark commit to full captioningBy John WaldoRegal and Cinemark, the nation's first and third largest theater chains respectively, have...
 By now you’ve seen the information about the campaign and you have heard about the Million Ear Challenge. We need your help spreading the...
 There are more than 700 captioned movies in iTunes which are viewable with captions on Apple TV, iPads, iPod, iPhones, etc!! To find a list of...
 Reading Skills and the Cochlear ImplantA recent issue of Ear and Hearing (2011) shared important results gleaned from a follow-up study of a group of...
 Tech Camps Offered by RIT to Deaf and Hard-of-Hearing Middle School Students two specialized programs for deaf and hard-of-hearing middle school...
Now You're Talking!
4 Years Ago
 Google has developed speech-recognition technology that actually works.By Farhad ManjooPosted Wednesday, April 6, 2011, at 4:36 PM ET If...
 Now that I’m bilateral I realize how cool localization of sound is. When I was unilateral I could hear a car coming but had no idea from which...
 I'm still fascinated with all of the things I can hear now that I have two ears.  It's true, ya don't know what ya don't know and...
 Hmmm... did I listen to what Allison had to say about rehab?  I wonder.  5675var s212654 = new...
 I'm getting ready to leave the office but Allison has one last thing to talk about, rehabilitation.      5561var s174132 =...
 OK, the time has come to see how well I can do with simple two syllable words.  5520var s702371 = new...
Allison is getting ready to flip the switch.....   5447var s502658 = new...
 I must admit activation was totally cool. Mind blowing just hearing the beeps after not hearing anything in that ear for over 10...
 Hopefully you've had a moment to read my blog and know what I'm expecting but now you'll have a chance to hear from Allison, my...
 Here we go A-day has arrived.  Just a reminder I was activated very quickly after surgery because of my travel schedule. Most clinics wait 2 - 4...
 Remember how I said you were going to get the not so attractive video?  Well here it is....the morning after.     5335var...
 If you’d of asked me 6 months ago would I ever go bilateral the answer was a definite no.  Why should I? I did excellent with one cochlear...
 Celebration is days away.  Don't miss your chance to join all the fun. If you haven't registered for Celebration here are a few...
Bilateral, who me?
4 Years Ago
 Yep that’s right, last week I had surgery for my second ear.  It’s something I never thought I’d do.  Since I have, I...
 I hope everyone had a fabulous holiday season and rang in the New Year with family and friends.  Don’t put up your dancing shoe yet because...
 Information compliments of HLAA: Twenty years ago, HLAA members came out in force when it was time to comment on rules under the Americans with...
  Right now about 90% of the people who could benefit from a Cochlear implant are either still struggling with hearing aids or living in a world of...
 Since Michael N put up his tree Brandy, Dacy, Joe P, and I decided to join the holiday fun Saturday night.  Click here to see what we were up...
 Date:  Monday, December 13, 2010Time:  8:00 p.m. - 9:00 p.m.(Eastern) / 5:00 p.m. - 6:00 p.m.(Pacific) Join Teresa A. Zwolan, Ph.D.,...
 Do you have a Nucleus 5 sound processor?  If so please keep all arms and legs in the vehicle at all times and get ready to Zoom!...
 FCC has announced that it plans to upgrade the capabilities of the 9-1-1 emergency system by allowing texting, video streaming and data sharing as part...
 We are excited to announce an upcoming HOPE Online seminar for adult. Like all of our HOPE Online events, these seminars are real-time captioned...
 It's that time of year when we're all bustling about, traveling to see loved ones.  It's also a time of the year when people have...
 Prize Details Trip for two to Cochlear Celebration 2011 taking place February 17-20, 2011 at Disney’s Coronado Springs Resort.  Trip...
Are you a square?
4 Years Ago
 Are you a Cochlear Nucleus CI or Baha recipient? Yes.Are you a member of Cochlear Celebration 2011 group? Of course! Hey wait a minute.... did you...
 Please Join Us for a Free Educational Event Tuesday November 16, 2010  6:00 pm – 8:00 pmCourtyard by Marriott Saratoga Springs11...
 CAPTIONED is an iPhone / Droid application that displays captions for first-run movies. You will be able to go to any movie theater and watch the...
 Just a note to let you know that I will be attending a company meeting from October 14th through October 24th. I look forward to catching up with...
 White House Signing Ceremony for the21st Century Communications and Video Accessibility Act of 2010 President Barack Obama will sign the...
Quote for the Day
4 Years Ago
 Every once in awhile I come across a new word (hobbledehoy) or quote I think is worth passing along. When you realize who you really are, you...
 Minuteman Implant ClubSunday, October 24th2:00 -5:00 PMChildren’s Hospital Boston at Waltham ALL IN THE FAMILY Our first meeting of the...
 A letter from the Wireless Rehabilitation Engineering Research CenterIn 2003, the Federal Communications Commission (FCC) adopted rules making digital...
 Have you stopped wearing your hearing aids? Are hearing aids not enough? Do you feel like you are missing out?  When using your hearing aids do...
 Please join us for this free educational event!Wednesday October 6th from 6:00 pm – 8:00 pmIslandia Marriott Long Island3635 Express Drive...
 It's that time of year again, and your child is going back to school. Here are a few basic tips to help you and your child find success with...
  2010 Fall Family FestivalSaturday, October 16thJoin us on the Clarke Northampton campus for a full day of activities. Build your network of...
Sept MA ALDAgram
4 Years Ago
 But now that September's here, we've got lots of activities we can attend.  Free movie ticketsThe MA Attorney General has reached a...
 During hurricane season you remember to have water, food, stuff for your kids (two and four legged), candles, flashlights, and so on but do you...
 Dust off your running/walking shoes because it’s that time again, time for the Fall HLAA Walk 4 Hearing!  There are a number in the...
 I met David last week at the Warwick, RI Connect with your Community event and had a chance to ask him.   4204var s522111 = new...
 Cochlear™ le invita cordialmente a que asista a un evento exclusivoLe Invitamos a este seminario GRATIS para: APRENDER sobre la...
 Today I was putting together a few things for an upcoming workshop and ran across ReadMyQuips. If you’re having a hard time understanding in...
 Are you one of many who believe chocolate is a fantastic source of antioxidants and really a food group? Maybe you’re a kindred spirit who...
 Do a quick google search for “music” and “cochlear implant” and a multitude of articles from both the scientific and popular...
Please join us for this free educational event!Thursday August 19th  from 6:00 pm – 8:00 pmCourtyard by Marriott Warwick55 Jefferson Park...
Please Join Us for a Free Educational Event Tuesday August 17th from 6:00 pm – 8:00 pmCourtyard by Marriott Warwick55 Jefferson Park...
 Scene: INT. OFFICE-MORNING PARRI: sits at office desk, look of determination. Dials 800-Helpme on Captel phone VOICE RECORDING:Hello,...
 After a few days of wearing the rechargeable batteries Rocky T, aka Spotted Dog, sat down with his mom. RT: So Parri tell me about the Nucleus 5...
What is this new AutoPhone Feature? -Industry's first and only automatic phone detection through auto telecoil  What is the...
 Last night I was baking peanut butter cookies for Rocky and Petunia while getting everything ready for a week on the road.  As I’m running...
 Please Join Us for a Free Educational Event Learn about the NEW Cochlear™ Baha BP100  Discover tips and resources to maximize your...
 Last month in New York I had an opportunity to see a show.  As Brandy and I were deciding which one to see that little coping strategy crept to...
 I had an opportunity to meet Thom a couple of months ago.  He’s a bright high school junior with aspirations of studying music in college....
 Please Join Us for a Free Educational Event  Thursday June 10th 6:00 – 8:00 pmLong Island Marriot Hotel & Conference Center101...
 As part of Better Hearing and Speech Month, Cochlear is privileged to honor the 2010 Graeme Clark Scholarship winners. ...
 Get ready to smile. When you have a moment take 4 minutes and watch this inspirational story about a young deaf child who gets a Cochlear implant....
 If so consider attending Family weekend, July 23 – 25, 2010 at Clarke’s Northampton campus in beautiful New England and meet other families...
 Connect with your Community Please Join Us for a Free Educational Event Nucleus is a registered trademark of Cochlear Limited. Cochlear, and the...
 Today I embarked on a new journey, heading to Newark on my first Amtrak train ride. I’m a bit of a kid at heart so I’m finding this a...
 Spring is in the air, the weather’s beautiful, birds are singing, and flowers are blooming.  My winter clothes have been replaced by the...
If you or someone you know answers yes to any of these questions, a Baha could be the solution:Do you have trouble getting sufficient loudness when using...
Do you have to ask people to repeat themselves in one-on-one conversations, even in a quiet room? Do you depend on lip-reading to understand a conversation?...
 Dear friends, families, and teachers of children or adults with hearing loss,  PLEASE FEEL FREE TO PASS ONTHIS MESSAGE: We are happy to say the...
 Want to talk to someone from Cochlear?Do you have questions about hearing loss, a Cochlear implant or Baha?Wondering if you should upgrade to the...
What is HOPE?
5 Years Ago
 Habilitation Outreach for Educators, Parents and AdultsOur HOPE program was initiated to support the (re)habilitation needs of children and adults with...
 There was significant support from the community on March 3rd at the Rhode Island Senate Committee. Over 20 people showed up and testified in favor of...
 Who are they?  Movie stars? No. Rock stars? Not that either but I’m certain one of them has a fun fact about a record player, David Cassidy...
 the recent Cochlear Community event with Chris Smith and Jace Wolfe! Couldn’t make it to the event?  Had to log off in the middle?...
 Did Freddy Mercury (Queen) say, “She keeps a mower and a shot gun in a pretty cabinet?”  Did Layla (Eric Clapton song) “try...
Hi y'all,  This has been a learning experience of how to: use a Flip video camera, caption the video, and now convert the original video posting to...
 Yes!!!!!   There are four of us from Cochlear in New England providing support to audiologists, surgeons, hearing healthcare providers,...
 Every so often I hear “but I’m too old to get a Cochlear implant.”  Phooey. There's no such thing as too old. Dick...
 Do you have a Nucleus 5 Sound Processor? Still trying to figure out the Remote Assistant? Are you wondering how to get to “that” screen?...
 While walking the dogs this morning I heard the crunching footsteps of something just inside the tree line of the state park. I knew it was an animal...
 Are you a Nucleus Freedom Impant recipient wondering…..  Is the Nucleus 5 Sound Processor is right for me? Is it really possible I can hear...
  I hope everyone had a great holiday season. As we were traveling cross country many of you were out there giving interviews and creating...
Road trip: Day 2
5 Years Ago
 I just finished a bit of tweeting.  How often can you say that?  Today was great!  Here are the top 10 trip highlights: Funniest...
Road trip: Day 1
5 Years Ago
  Our first full day on the road was a blast.  Are you following us?  If so send me your answers to today’s questions.  If...
 Who? Kaci, Max, Rocky and Petunia (my dogs), Ashley (sis) and Me! Where? Colorado to Massachusetts.  Why?  I’m the new Cochlear...
Today Show Clip
5 Years Ago
 As promised, below is the link from the Today show that aired this morning about the Root family and their three bilateral children.  It is...
 I was emailing someone who asked if I needed captions when I go to the movies. Answer: No, I don't. Picture it opening night,...
Great news! This Thursday (Dec 10th), the Today Show on NBC will feature a family from Northern California where all three children (ages 8, 6 and 1) are...
We are looking at adding colors to our Baha BP100 product line - but we need your help! Our colleagues in Sweden have put together a project to select...
Have you checked out the store? If not, get excited because all of the Nucleus 5 accessories are available online! If you’re reading this I’ve...
 In a couple weeks I’ll be in Boston and have an opportunity to visit my brother and his family. What I realized this week is it will be the first...
It always amazes me when I come across people who know what a cochlear implant is but this weekend I was shocked. I was volunteering at a festival Saturday,...
June 12th: I’m going in to get hooked up with the Nucleus 5 and I’m thinking it’s smaller, lighter and the Remotes Assistant is too cool...
Join Cochlear America’s President Chris Smith as he introduces the Nucleus 5 System – the only cochlear implant system that offers the smallest...
Cochlear Americas Announces FDA Approval of the Nucleus® 5 System, the Newest and Most Advanced Cochlear Implant System Life-Changing Technology Restores...
Do you have questions? Ask away. I've been using the Nucleus 5 processor since the first week of June! Through out the week I'll be posting answers...
Did you ever wonder what recipients do with their processors during a triathlon? Do they wear them? Where do they put them so they don’t get lost and...
If you haven't heard.... HLAA Applauds United Healthcare’s New Coverage of Bilateral Cochlear Implantation HLAA is delighted to announce that...
Recently there have been a lot of questions surrounding MRIs and cochlear implants. I want to be certain you all have the latest information.  The...
With summer vacations planned people often ask me if I wear my Freedom through airport security. ABSOLUTLEY! Although there was this one time when I was told...
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