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Rex

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My Story

Update: 4/3/2014: Almost 4 years since my first activation and 3 years since going bilateral. OOps, it is now 4/22 - I must have been distracted by all the sounds I hear.  My feelings today are the same as my last update on 11/14/2011.  It does still get better and better all the time.  The biggest thing I notice is that I can easily carry on a conversation one on one with my volume and sensitivity set as low as 2 or 3.  I know this because I have one of my 4 settings with the volume and sensitivity set at 2 - I use this setting when I want to use my bluetooth for phone or tv(low settings eliminate the buzz in tcoil), and often someone comes up to talk to me and unless they more than about 10ft from me I don't change settings and still understand everything.

 

 

As of 11/14/2011:  I am bilateral (both ears) with Nucleus 5 implants. My first implant was in June 2010, and the 2nd in June 2011.  To say that I am very, very satisfied and happy with my results is an understatement.  It has been a positive "life changer" nothing short of a miracle.  As you can read below and in my blogs,  my journey was from depression and feeling of hopelessness to joy and happiness.  I had gone through about 15 years of declining hearing with gradual withdrawal from family, friends, and social situations.  Every hearing moment is now a true blessing.  Below is my first post to my profile.  It is no longer "scary, and going too fast".  Now it is just "Exciting".

 

First Post 5/15/2010:

Exciting, a little scary, and going pretty fast.  I am 67 years old.  Got my first hearing aids about 9 years ago which worked pretty good for a couple years.  Now have 2 BTE's that are basically useless.  My daughter, bless her, took me to a specialist just 2 days ago on May 13th.  I knew my hearing had gotten a lot worse, but was kind of in shock when on the "word recognition" test I got absolutely ZERO in both ears.  I had not been optimistic about the visit because I had read somewhere that the implants only gave a "sensation of sound", and that you really couldn't understand a conversation.  My daughter works with a doctor that is also a personal friend of the family, and they had mentioned the implants to me a few times over the last year, but I just shrugged it off as something that probably wouldn't help.  Needless to say that in the last 2 days I have been reading many very encouraging stories, but have all kinds of questions running thru my mind.  I am already scheduled for final testing on June 18th, and if all goes well, according to my darling daughter, we will schedule the surgery that day, so you can see why it is all moving a little fast for me.  All  my family, and everyone at work is excited because they have been "putting up with my deafness", but I almost want to say, "hey, wait a minute, it's me they are cutting on, and do you know how much those things cost?".  My deafness has been very depressing, but like many I suppose, I just thought I had to live with it, so it is taking some adjustment to believe there really is some hope.  As for my hearing aid experience I pretty much always tell people that it is a rip off except for those with mild hearing loss.  Just 3 weeks ago my HA audiooligist was trying to sell me new BTE's when it is obvious that hearing aids are not helping me at all.  Hopefully I will get some feed back from some of you.  Thanks for being there.  Also looking for feed back on the comparisons between the Advanced Bionics and the Nucleus.  Right now I am leaning towared the Nucleus.

 

Rex Whaley 

 

Blog entries:  The Blog entries below are chronological starting with the oldest at the bottom and working up to the most recent at the top.

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Blog Entries
Yes, I am still here and as happy as ever with my implants. I did post update today to my profile, but it hasn't changed much since 11/2011.  I...
Second Hand sound
7 Months Ago
Here I sit at my home office thinking I need to post an update to my profile and wondering why I can hear the digital clock across the room ticking, but not...
A post CI moment.
2 Years Ago
Jean Claude's comment about nodding like he undertands when he doesn't have his CI on reminded me of a phone conversation with my daughter...
GrammaK responded to one of my blogs with a great statement, "we have become comfortable with our hearing".  As time passes, many, and...
Hey, I am an old man, and old men are allowed to do dumb things!  Yes, I have gotten in the shower a couple more times with my left processor on. ...
blog not posted?
2 Years Ago
I was looking at a comment Meribeth received today at 2:26Pm, and in lookting at all the responses I noticed that Jimmyl has posted a comment too - I went to...
I walked into my office building a few minutes ago, and a young boy (about 7) and his sister(maybe 5 or 6) approaced me.  He asked, "do you...
Yes, I must make a little confession here.  As most of you know, my blogs are usually pretty positve because I have been thrilled beyond words since day...
Yes, Volunteer for a day for continuous CI moments. I was a real winner yesterday and today.  I volunteered to help Paula Moore and her Cochlear team...
Yes, I am still having great CI moments.  Went to my daughter's company christmas party Saturday night.  About 100 people on a paddle wheeler...
A big Thank You to GrayBeard.  Two days after his A day he watches a ball game without captions.  As you probably know - I thought I wasn't...
Driving to my daughters Sunday my new CI started cutting out and coming back on - sometimes off for just a few seconds & sometimes for 30 minutes. ...
Yes, I still have the CI special moments - I say special, because every moment is now a CI moment since going bilateral.  Some are just more...
Yes, I still have the CI moments after a year.  One of the women in the office is now always asking me to speak louder.  I told her to have her...
2nd mapping on my new baby went great today.  Audi did everything she normally does on the 3rd mapping, because I was doing good after 1st mapping,...
I was ready to blog about my activation this morning when I read Hanah's post so I had to send ther some encouraging messages first since I had a similar...
Was having my coffee this morning when a noise suddenly started.  I asked Heidi, "is the water on? refrigerator running a little loud?, ac going on...
Post Op Day 6
3 Years Ago
I am still doing very good with post op recovery.  Worked yesterday all day, and back in the office today.  I hope to get A day set for June 28th...
All is well this morning.  Even doing a little better than the first time.  Been up since 6:00 this morning and no pain pills yet. Thank you all...
I haven't named the first one yet, and here I am fixing to have another new baby (CI) next week.  With the first one my biggest concern was, will it...
I had mentioned once that before I had my CI I used a "captel" phone that displayed what the other person was saying & it could also be hooked...
Yes, the CI moments are endless.  After CherylO's WD-40 story and all the comments, we should maybe start calling them the WD-40 moments.  The...
We often see questions and comments about whether hearing with the CI is like "normal hearing".  No, it isn't "like" normal...
Went in today for my cardiologist to give the ok for my bilateral CI surgery scheduled for June 1st.  I figured since I passed the treadmill stress test...
Look ma, no phone!!
4 Years Ago
Someone surely said, "look at that man out there - he is walking around with coffee in one hand a cigarette in the other, and talking to...
Thanks Jeanni for the tip on where to buy the Clear Sounds CLA7v2 Neckloop. So far VERY PLEASED with the neck loop - i had hesitated before to spend the...
It is official.  2nd CI surgery set for June 1st.  I originally had an appointment with my doctor for Feb 15h "to see about the 2nd...
I was going to post about my second CI surgery scheduled for June, and all my emotional thoughts about that, but I just read the bios on the scholorship...
Aid for TV
4 Years Ago
For temporary use I bought a wireless device with a headset from Radio Shack today  ($50.00), and watched about 6 hours of TV with no captions. ...
Yes, I have been a little absent lately, and yes I still have almost daily "CI moments", but after 6 & 1/2 months they are becoming the norm...
Earlier this evening I sent the following to Gatorfan and thought I should share it:"Thanks for the great Holiday blog. We are all truly blessed. ...
It can't get much better.  Thursday I returned from 6 days of skiing etc with my daughter, son-in-law and 2 grand sons, 7 & 9. YES, I...
Shame on me.
4 Years Ago
I think I missed sharing a couple of my minor CI moments that were actually pretty significant.  The most recent was last week-end when I was...
Thanks for the tips.  Especially the one about wearing a helmet and the newer snug fit- I hadn't thought about that.  I am also thinking about...
CI and snow skiing
4 Years Ago
Looking for advice on how not to lose my CI when snow skiing.  Farmer Jim mentioned a Baha strap.  would that work?  I have used the snug fit...
Like JB Westlake said, "Sometimes its just the smallest things".  There I was Wednesday night in the grandkids (7&9) play room - lights...
After that long blog of mine a few minutes ago, Heidi said I should tell you about her wind chime.  Quite often I lay down for a short nap on the...
Walked into the office a little later than normal yesterday.  Misty asked, "where have you been?"  I said,"in the car.", she...
I share an office with Gina.  Yesterday I asked, "Gina, what is that dinging noise? - sounds like it is coming from one of our...
As most of you know - I have been doing great with my CI, except on the phone and with TV.  Well... 1.  I checked company voice mail and understood...
Went back and checked my friends list - It was Del that talked about speed changes.  I thought it was one of us "old codgers".
Speed changes
4 Years Ago
Someone had blogged about being on a higher speed - I think even up to 1600.  Last Friday audi did give me a program with a 1200 speed to try out. ...
Day 53 since A Day - had 4th mapping today.  Part of it was putting me in that scary sound booth - as she closed the door I remembered the last time...
Ellen asked if I've had any new exciting CI moments. Well..... still having lots of little CI moments.  I guess the big one lately was last week...
I called the TV news, but they didn't think it was newsworthy so you all get the exclusive scoop.  Many of you know it takes awhile to learn what...
As some of you have noticed on my blogs - I have been calling people on my cell phone for practice, and sometimes do excellent and some times not so good. -...
Yep, that was at least my subconscious thought probably thousands of times over the past 10-15 years, but no more!  Today was a big 7 year birthday...
Me bad - again!
4 Years Ago
Yes, it appears that I will subconsciously go to any extreme to have an excuse to have someone talk to me.Here I am back at the office at 8:45, because I...
Angels? Saints?
4 Years Ago
I don't really know what or who an Angel or Saint is, but if someone asks me tomorrow I will show them all the comments to Heidi's blog and all the...
Had 3rd mapping today.  All electrodes programmed.  The 80% & 100% is a little deceiving in that audi said it was one of the easier...
How can one part of my brain be smart enough to improve my speech understanding every day, and the other part not remember where I put my remote?  Yes,...
Thought I would give an update so I can have a record of my progress.  My spirits are up a bunch - it is just so great to be able to understand...
S&WB - volume
4 Years Ago
Managed to get the S&WB installed and activated.  The pre-evaluation said I should be working at level 4 so I guess I am doing ok. I can't get...
How can you both pass and fail a test?  Well....it was a 2 part test.  I am an old man so you have to give me a break.  I could stop right now...
Yes, Mr. impatient here.  Have lived with using txt msging and email for 10 yrs, but really looking forward to phone use particularly for...
I apologize - I don't know where the rule book is on the blogging stuff, but number one must be something like, "We like a laugh better than all...
I hesitated to post this one, but I will probably hear you laugh from here.  We are a very close group here in the office.  About 3 times a day I...
Most of you will relate to this one.  I have a Kindle - I read books every night and read the newspapers in the monrings.  Well, it has an audio...
Had 2nd mapping this morning.  Can't tell a lot of change yet, but I started out so good, I have no complaints.  Again, I have no complaints,...
All future comments about CI moments will all be MINOR CI moments compared to this evening.  This I will cherish the rest of my life.  My angel...
When someone isn't around I talk to myself all the time just to hear me talk.  Is that normal?
Some more Wow!  Hope it isn't illegal to listen in to other people talking to each other.  Have been at the office 2 hrs and just turned on my...
Amazing is all I can say right now.  Just hearing the tones & sounds during the testing was just great.  When she first turned it on for me to...
I am sitting here looking out my home office window and thinking how this is my last day of "silence".  Enjoying it? No.  Tomorrow after...
Yes, it is kind of like it was waiting for my kids and grand kids to be born.  My CI will be awakened Monday at 10:45.  Got hair cut this morning -...
Help - S&WB
4 Years Ago
With my activation coming up next Monday - I see you all referring to the S&WB for practicing.  Where do I find that?  Is it on this site or is...
Had checked on Nona because I try to keep up with all the recent A Days.  Here was her reply: From: NonaSent: July 15, 2010 - 7:53 PM"Wow!! I...
Went for post op appointment today.  Dr. says everything looks good.  Scheduled A Day of the 26th - 2nd mapping on the 28th - and 3rd mapping for...
My first pre CI moment was when I went from hopelessness to hope and immediately started looking forward to visiting family and friends even though it would...
Thought I would share these surgery pictures.  My post op appointment is next Tuesday the 13th and will get an activation date.  
Almost feel a little guilty for doing so well, but have been taking lots of liquids and lots of naps.  Remembering my knee surgery from 30 yrs ago I was...
Feeling better than I thought I would at this point. Came home about 4 yesterday.  i understand now why people don't blog much right...
Surgery tomorrow
4 Years Ago
Tomorrow at 10:30 is the big day for my surgery.  Kind of hard to believe it has only been about six weeks since my first appointment to explore the...
Surgery scheduled for June 30th!  Surgeon won't do both at same time, but I am ok with that.  Friday I went for my final tests; CAT scan, chest...
I noticed that 100 people have viewed my profile, and many of those are maybe just  considering it, or perhaps waiting for a surgery date like...
Only nine days since my first doctor appointment and six days since I discovered this great supportive community.  Thought I would share this for others...
All your blog posts are terrific - Thanks.  I joined this site on the 15th, and it has been a great, great help, but I haven't been getting much...
How can if find out if we have anyone on this site that is a patient of Dr. Vrabec here in Houston? thanks 
I think I am figuring out this message and blogging business.  All of this is so new to me since I had felt there was "no hope" for ever...
Just trying to figure out this blogging business.  Is it better to have a blog or just communicate thru regular messages or email?  I guess...
Photos, Files & Sounds