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Rustycms~ Cochlear Awareness Network Ambassador

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My Story

I have been Hearing Impaired all my life (nerve deafness, they said at the  audiologist) , a teacher noticed when I was 10, because I could hear "sounds"  my parents did nothing and I did not get evaluated . I quit school at 16 because I was  always being sent to the office for " not paying attention". Even telling them I didn't hear them  or I couldn't understand what they were saying  didn't alter my " detention" time. Frown

           I have gotten my GED   and furthered my educationWink on my own time and I probably  benefitted  from the choice to "quit" as I have developed  visual skills and perceptions  to aid in an auditory world. Word comprehension has always been a problem, now it has worsened to the point that I am thinking Cochlear. I'm excited about the information  I've been reading on the Freedom Nucleus 5. I have an evaluation  scheduled Oct 5th.

        Four   years ago my audiologist Susie R. ~ suggested I get in touch with the The HLA of Knoxville ( SHHH at the time ) . This group  has been such a blessing to me,Laughing it has opened my "ears and eyes" to a world of wonderful people, that understand the idiosyncracies of hearing loss 

     I am truly  excited after reading about the Freedom Nucleus 5 and the music enhancement ~ In my world ~ Music ~  is the air I breathe~ the song I dance to ~ the gift that  God gave me that allows me to play music at nursing homes for the wonderful people there.  Without music I would not be "me". I will ask a million questions , I'm sure !! Laughing

  On Oct 5th 2009 I was accepted as an Implant recipient  and given a surgery date of Dec 31,2009 

       Update ~ Oct 19th Surgery date Dec 31st cancelled ~ Will get a new date after predetermiation.

          FYI   Having the Dr ordered ~  VNG test the 18th of Nov~  http://www.stopdizziness.com/services_vng.asp    I don't have any dizziness ~~

         I believe all went well with the  test ,  I have another appt Dec 7th to meet with the  Dr and see what the results were , I believe. Also waiting for insurance approval 

     Update ,  On Dec 7th everything looked  great  insurance was approved and  the surgery date of Jan 6th was given,  I'm counting down , still hoping for a call during  the 2 week Christmas break . They said they will if they have an opening ~ Praying !!! Whooo hoooo

    Update ~They changed the date a few times LOL but it all worked out  best for me   and is during my school  break ~~ AMEN ~ They Implanted me Dec. 28th  Whooo Hoooo !!  I actually have a Cochlear Implant. Will see Dr Jan 11th and get  ativation date ~ I hope !!  Whoo Hooo what a ride this is going to be.

   Update had staples and sutures removed Jan.7th ~ had a couple pulling and bad weather moving in. Was all healed and  feels great now. ACTIVATION DATE !! ~  Jan 21st 2010 at 2:15 pm. Whooo Hooo !! 

   Update  back to work 2 weeks after surgery it would have been 9 days but had 2 "snow days" then the weekend .

Update Jan 21st 2010~~  Successful activation ~~ wonderful  understanding conversation again  first mapping  Feb 4th

    Update    Feb 4th  Great progress 4 new settings next map 

    Update   Feb 17th  More progress understanding all conversation, added Music program and 3 more training levels. love the CI On a roll !!!

      Update May 2010 Walk 4 Hearing 5 K in Chattanooga ~~ people that knew me before my CI  were so surprised at my ability to communicate ~ so was I heheeh! 

    Update June  2010 traveled around for 20 days and  I attended HLAA convention in Milwaukee and  was so amazed at my  word comprehension even in crowds and noisy areas. It was so much fun meeting so many from  this  community.

     Update Sept 2010 Oh how I  love my CI , Love doing 5 K walks and races, benefits, Love being able to CONFIDENTLY participate in life for the  first time is  20 or 25 years  .

      Update  Oct 29, 2010 scored 88% on  words in test booth and 100% on sentences ~~ WOW !!! I'm thrilled. Also got the Zoom update ~it's amazing

      Update~ Jan. 29 2011 ~  scored  96 % on words and 100 % on sentences ~

       Update ~ attended  the Cochlear Celebration on Orlando ~ Feb 2011 ~ was amazed at how much comprehension I had in a noisy environment~ with the Zoom  technology in Noise channel , sure didn't miss much ~~ LOL .

           Update ~  Nov. 6th 2011     over this past  spring and summer I was aware that my residual hearing was so bad that I wouldn't miss it going bilateral. I have felt the " calling " to go forward with it by the "signs' prayers and talking to friends  I called the Dr in August 2011 got and appt for Sept 16th as Dr M said I was a good candidate. After meeting with him the gave me a surgery date of 3 weeks later ~ I was surprised as the first one took almost 3 mos. Naturally I said "go for it " as it turned out  Fall break was the week following the surgery  so I had that week to recuperate ~~ It's amazing being bilateral after 2 weeks activation! 

       Update  ~ July 14th 2012 this amazing journey continues ~I'm finding that  8 mos ( Oct 25th 2011 ) after  bilateral activation new doors are opening,new sounds are being heard, word discrimination is better,  it has given me directionality, better music comprehension, and paying it forward is so very rewarding !! For so long I knew nothing about the possibility if hearing restoration, to have learned of this group and the HLAA was one of the most incredible experiences of my life. To be able to hear as I've NEVER heard is such a blessing and a most  remarkable miracle !!     

 

 

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Blog Entries
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Hi Everyone ~ Melody just sent me the YouTube site for my bilateral activation 10-25-2011 ~My wonderful  audi Karen did both activations ~ Cricket is...
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Hi Everyone ,  What a day!!!   I'm blogging this  ~ FYI and because of the lack of knowledge at Dr's offices regarding the...
Hi Everyone ~                 ~I had a map June 28th and WOW !(for the...
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Hi all  here is a story that I did regarding hearing and my Cochlear Implant for Hearing Awareness month and ~~   Paying it Forward is HUGE for me...
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Hi all, I just took Cricket's bandage off ~ it looks awesome ~  it looks  so clean I didn't touch it ~ whoohooo.  She has no...
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Hi Everyone ~            I'm so high  and excited about this Celebration that I could...
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Delete Message Forward this Message     Friend Request From iamanicelookingnlady From: iamanicelookingnlady...
I'm so blessed !   I  can use my head for "special" things ,Whoo hooo !! hugs to all , Rusty
I'd like to share this with you ~~ Two of my daughters ~ Melody, ( standing) and Cricket (wheelchair),and I  ~ did the 5 K  Race for the Cure...
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Whoo hooo ~  I wanted to share this  picture of the Cochlear Event  meeting last night in Knoxville ~ The team of DeeDee , Elizabeth, Joe and...
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From: SharonC Sent: March 01, 2010 - 1:20 PM Rusty I have searched and searched and cannot for the life of me find that Can of WD40 could you blog...
3rd Map  Wow  ~ I had my 3rd  Mapping  ( is that what you call it ? or is it an adjustment  until you get all 4 programs ? )...
 Hi ,  I'm used to hearing aid warnings so this is frustrating ~~ I have never heard any  alert that the battery was going dead, it just...
Hi ,  I had my second visit with my audiologist , the 4th , she said all is going great . She explained about the training process ( now that I can...
Ah Day 9 after activation~~ Life is  truly amazing, my excitement continues , my confidence is  soaring ~I‘m wearing the processor every...
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LOL I turned on the computer this morning and found an Email from Melody  She  has YouTubed my first sounds at activation. This I never expected ~...
My daughter Melody was so sweet to post  for me , my brother Jim  took video !  ~ I did laugh hysterically ~ all the  sounds  the...
Hi ~ I just talked to the  Audi that is going to Activate me.( because I hear better on the Captel LOL  for the present)  I understand that I...
Here  are the falls that I couldn't get to ~~ My bother  took this picture Friday  The sun was at the  wrong angle  but...
Ah !! I finally got to play in the snow~~ I drove to the Smoky Mts  and found Foothils Pkwy was still closed, so I went to the Park ~ Well the ...
Wow !  What a YAY DAY !!!  10 days Post 0p with a snowstorm brewing  ( oh I hope we get some snow ~ it is a "dusting " so far ) and...
1 week Post - Op
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Hi Everyone !          Well one week ago I was all sitting in the hospital ~  thumbs up and pumped up about the surgery and...
Day 4 post -op
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Hi Everyone !              On day 4 ( gosh , time flies)  I feel good . I'm taking  Ibuprofin ~...
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Post - Surgery
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Good Morning  ~ Thank you, ~~  I'm feeling wonderful, Considering,  I was "out of it"  for 2  ~1/2  hours ...
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My Wonderful Family,  Gathering for Christmas 2009
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Hi,                  I saw and recorded the Today Show ond he Root Family ~...
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We had our  first snowfall today  2 inches  ~ Magic always greets me when I go to the barn. He is all wet and muddy  but love the...
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Hi , it was a "snap" LOL I got the giggles when I was asked to count backwards from 98 by 2's after the  cold air in each ear  and...
VNG test
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Pictures
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Questions !
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I'm wondering ~my mind runs rampant seeking information  LOL ~~ I have so much recruitment with the hearing aids~ does this stop when you  get...
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Yes, Dec 31,
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Thank you ~
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Thank you all for your words of comfort !!                    ...
Beloved dog
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Evaluation
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Photos, Files & Sounds