Darcy

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My Story

Hi everyone, I received my first cochlear implant almost 11 years ago but am very excited about going bilateral with a Nucleus 5 sometime this spring.

 

I started losing my hearing at about 3 years of age, started wearing hearing aids at age 5, and my hearing just progressively got worse. I don’t really know why I lost my hearing as there is no one else in my family that has had any issues with hearing. I assume that my mother had come into contact with someone with German measles while she was pregnant with me as there was a German measles epidemic in that part of the US at the time.

 

I wore hearing aids in both ears from age 5 until I got my first CI for my left ear (at age 34) and continue to wear a hearing aid in the right ear.

 

My first implant was an Advanced Bionics C1. They implanted it in my worst ear as I was still able to function with a hearing aid in my right ear. The implant improved my hearing ability tremendously but I preferred my hearing aid sound over the cochlear and still consider it my “favorite” ear. Whereas I feel I get more loudness from the cochlear, I get much more sound recognition when I have my hearing aid on as well. If I only wear my hearing aid, I struggle to hear, if I only wear the cochlear, I struggle to understand, so they have always been a good combination and I have been reluctant to get a second cochlear because I was afraid I would lose the clarity.

 

Last spring, my hearing aid “died” but after four days in the dry aid kit, I was finally able to revive it. I went to get fitted for a new digital aid, the strongest available, but I either get non-stop feedback or if they adjusted it to get rid of it, then it would sound like I was under 100 feet of water. We tried several ear molds, several programs, but nothing was working. So then the audiologist suggested the bilateral implant. After testing me and telling me that I qualify, she pulled up my old records and my hearing was actually bad enough 11 years ago to qualify. Amazingly even though my hearing has progressively gotten worse over the years, hearing aid technology has gotten better so that I did better on my test (with my old aid, the new one I couldn’t hear a thing!) this time than I did 11 years ago.

 

So now I have had all the pre-surgery tests, met with my surgeon last week and am anxiously waiting to get the call to tell me when my surgery will be, probably May they say. Hopefully my old hearing aid will make it that long!

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Blog Entries
Mapping 02/17/11
4 Years Ago
I had an appointment with my audiologist last week and she had me go in the booth for the first time since I got approved for surgery and did so bad (or good...
As you have probably already read on Jeanne’s blog, we went to the HLAA meeting in Harrisburg PA on Monday evening. It was so wonderful to finally meet...
This has been a difficult year, but as Thanksgiving creeps up, I must say things are really starting to look up and I will have lots to give thanks for...
A new CI moment!!
4 Years Ago
Today is the first weekend Jamie & I have been home in about 3 months, so of course we have alot of chores to catch up on. He has been outside picking up...
PA Walk 4 Hearing
4 Years Ago
Just wondering if anyone out there is planning on going to the PA Walk for Hearing tomorrow morning.  PA Walk 4 HearingDate:Saturday, September 25,...
I'm Back!!
4 Years Ago
Sorry to have been so absent lately, but taking two weeks vacation in the middle of chaos, you come home to more chaos! First of all, Alaska was absolutely...
New map 08/16/10
4 Years Ago
I had another mapping on Monday. The last time I went, I was given 3 more volume programs to get used to more and more sound and was told to only wear my new...
I know it has been awhile since I have written, life has just been too busy! Been trying to stay on top of what everyone is doing but know I have missed some...
I figured it out!
4 Years Ago
Yesterday morning, I was all ready to head to work (hubby always leaves before me) and I was hearing this tick tick tick noise, non-stop. I took off my...
Because my background noise tends to be wind-chimey, there are times when I am not sure if it is something I am really hearing and just haven't figured...
What a great 4 days so far!! :-)   On Friday, there was a group of us at work around a baby (his mom used to work for us and brought him in)...
Here are some pictures to show the difference between my old AB CI and my new N5. Quite a bit smaller now! My first set of batteries died this morning,...
After weeks of weeks of anxiously and impatiently waiting for A-day to get here, I woke up that morning like it was any other morning, as if nothing big was...
Wind chimes!
4 Years Ago
Just a quick blog from my laptop, computer room being used as extra guest bedroom still. Amazing! Started out just as loud windchimes, can't complain...
New A-day!!!
4 Years Ago
I just got an email from audiology, they need to change my appointment to NEXT TUESDAY!!!! A whole week earlier!! And the Cochlear rep will be...
Three Week Post-Op
4 Years Ago
The first thing my surgeon said was how much better I looked than at the one week post-op where she ended up sending me to the ER! I definitely feel 100%...
This is really weird, I have commented several times how I have yet to meet someone else with a CI. Turns out I do know someone, haven't seen them since...
A Minor Setback
4 Years Ago
I have been feeling pretty good for the most part since surgery, just the stupid sore throat (which is finally disipating!), the stupid frog in my...
Day Three Post Op
5 Years Ago
Hello everyone, I am still doing so much better than last time, but my body decided to tell me that I needed to rest! I was so tired yesterday! Part of it...
I never went into much detail about my last surgery, but I was absolutely miserable, extremely swollen and bruised, lots of pain. As soon as I woke up in...
I had my Pre-op and anesthesiology approval appointment this morning, all looks good. They did the usual blood pressure and pulse, but also did an EKG, which...
Only 8 more days!
5 Years Ago
Well the count down is finally into single digits! I am really ready to get this part over with!  I also want to apologize for not blogging as much...
Getting closer....
5 Years Ago
Four weeks from today!!! It seems the days are dragging by, but I know it will be here before I know it.  My hearing aid earmold is old and...
I have an appointment on April 30th to get my current CI mapped and then I will be having surgery for my second CI on May 20th. Would anyone suggest doing...
Well, surgery is still over three months away, but I just got a letter in the mail with my appointments for activation day and follow-up appointments. So...
New Old CI Moment
5 Years Ago
One of the main reasons I have waited so long to go for the second implant even though I qualified at the same time as the first is because I could not...
I have a date!!
5 Years Ago
Well, it is not until June 21st, but at least I can start the countdown. Definitely going to test my patience for sure! I will just to remember that...
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