MargoK-Cochlear Volunteer

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Location: Hartford, Michigan

Who Has Hearing Loss: I do

Hearing Loss Type: Progressive Loss

Hearing Loss Cause: Accident/Trauma

Device: cochlear

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My Story

I am a cochlear implant old timer! I am an adopted child with no known family history. My initial hearing loss with no hearing in my left ear was detected after I was in a car accident when I was 2 years old. Although no newborn hearing tests existed when I was born, my Mom feels it was the accident that caused the hearing loss due to my problems hearing after the accident. Over the years, it was determined that I also had a mild progressive hearing loss in my right ear. I did not start wearing a hearing aid until I was 21 years old. When I was 25 years old, I got a virus that resulted in total deafness over a two month period. I learned sign language, took lipreading classes,got a hearing ear dog, and learned to cope with my silent world. I thought it would be Heaven before I could hear again. I couldn't have been more wrong. I got Heaven on earth when I was implanted to the N22 in 1989. It took 3 months for most voices to sound normal. I was blessed with the help of my husband, children, and friends who helped me to make sense out of the noisy world and learn to use my cochlear implant to the best of my ability. Over time I learned to use the telephone and listen to music with a radio cassette player and patch cord in addition to recognizing speech and environmental sounds. In 1998 I was re-implanted in the same ear to the N24 due to the failure of electrodes. I have been blessed over the years to have had 6 different speech processors. Each new speech processor has helped me to expand my abilities with my cochlear implant. I love using my Freedom speech processor and love the fact that the rest of my body may age but my cochlear implant will never be obsolete. I look forward to what cochlear implant technology with bring in the future. May 2008-Now my ci story has a new chapter. I've recently gone through auditory testing and a CT scan of my un-implanted ear and am waiting for insurance approval to be implanted in that ear. I've had a lifelong dream of wanting to be able to hear out of two ears. So I'm cautiously optimistic to become bilateral. I know that this long deafened ear will require a lot of work and effort should my dream come true but I'm willing to take this challenge should it happen. August 2008-Insurance approved my having ci surgery last month. My ci surgeon gave his consent in late July. I have a surgery date of Nov. 5, 2008. I'm looking forward to seeing what the future will hold bilaterally for me!

 

Nov. 5, 2008 was the day I had ci surgery in my left ear, which has now made me bilateral.  I'm now one day post-surgery and am doing well.  I have 5 weeks to wait until activation.  One of the best parts about the surgery this time is that I was able to have my right speech processor on before surgery and in recovery.  What a difference it is to be able to communicate, especially in recovery when one feels very drugged!  I'm looking forward to what my bilateral journey will be like now that I have the surgery behind me. 

 

June 2009-I'm living my dream of hearing out of two ears with my bilateral cochlear implants.  This is quite the ci journey as my new ear, having been deaf for 54 years, felt sound as vibrations upon activation 6 months ago. It has come a long ways since those early days. I'm definitely a poster child for patience, persistence, positive attitude and prayer when it comes to this new ear. Even though the new ear is not as skilled as my old ci ear, it is amazing how my brain can take two different signals and produce better hearing.  I love being bilateral. Voices and environmental sounds are richer, more vibrant and my brain much prefers to listen with two ears. I'm developing sound localization skills.  Music is so much better with two ci ears! I am blessed indeed!

 

January 2010-I've been blessed to be able to upgrade to the Nucleus 5 for my left Freedom ci ear. I'm very happy with my Nucleus 5 for my young ear, which has come a long ways in the past year. It still lags behind the older ci ear but that is ok.Together both ears provide me with a rich, vibrant sound. The Nucleus 5 is giving more clarity to sounds which I think is very important for this young ci ear.

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Blog Entries
One Month Ago
    I truly believe that all of us who are seeking cochlear implants, are newly implanted and waiting for activation, new cochlear implant...
One Month Ago
Today I’ve had my Nucleus 5 upgrade for my younger left Freedom ear. I’m very happy with this new speech processor.  The older sister...
One Month Ago
A bilateral ci recipient who is a teen was having pain over her implant receiver site several months after becoming bilateral.  She was worried over...
One Month Ago
I never thought I would find a sound that I truly don't like and hope that I never hear again.  Well, I've found one. Wednesday night I was...
One Month Ago
Debbie asked about my chair pad loop system. I love using assistive technology to help me get the most of my cochlear implants. I looked into...
One Month Ago
This afternoon I went to my ci audi to see what could be done about the very low battery life I've been receiving with my Nucleus 5 upgrade. Well,...
One Month Ago
I now have 3 days of experience with my Nucleus 5 upgrade on my Freedom ear. Sound seems to have a bit more clarity with the Nucleus 5.  For...
2 Months Ago
A new adventure has begun in my bilateral ci journey. The little sister Freedom ear is now the proud owner of a Nucleus 5 upgrade!  The older...
2 Months Ago
I gave my young ci ear lots of auditory stimulation on New Year's eve. My husband and I went to the movies to see "It's Complicated"...
3 Months Ago
Last night I went to a high school basketball game for the first time in years. Our youngest son who is a civil engineer and who moved back to the area...
3 Months Ago
I had a great day today with my bilateral cochlear implants. I got a haircut today, which I've needed for quite awhile now. In the past, there would...
3 Months Ago
Today I had my one year celebration and mapping appointment with my ci audiologist. I was so excited! After all, I have a lot of reasons to rejoice over...
4 Months Ago
I have tears of joy tonight. I know it is early but I was in the mood for listening to Christmas music. Last year when I attempted to listen to...
4 Months Ago
Hi! It is getting closer to the time when the N5 upgrade for the Freedom will be available. Even with the trade in value, I'm still thinking about...
4 Months Ago
By now, most people know that my young 10 month old ci ear has had it's challenges in learning to hear. I've come a long ways from those early...
5 Months Ago
I've discovered another auditory training tool to use with my cochlear implants. I like to use a lot of ways to add auditory training to my young ci...
5 Months Ago
I heard something today that has left me awestruck! My adult daughter spent the night last night. My husband and I don't see Sarah much, so her...
6 Months Ago
Ah, it is that time again when a new speech processor is available with new and improved features and I'm having to patiently wait for upgrade...
6 Months Ago
I was talking to a lady that I hadn't seen in quite awhile two days ago and she asked me how I liked being bilateral. I told her how I really like being...
7 Months Ago
On Friday night I saw a Neil Diamond concert on television that brought tears to my eyes. As a teenager, I loved listening to Neil Diamond's...
7 Months Ago
It is now 8 months since activation, making me bilateral.  What an incredible ride it has been so far-from vibrations-to handbell choir sounds-to the...
8 Months Ago
   It has been almost 7 months since I became bilateral.  My younger ci ear has progressed slowly compared to the older, well experienced ci...
9 Months Ago
Yesterday I saw my ci audiologist to have an annual checkup of my old ci ear and then to be put in the sound booth.  My old ci ear did great -100% on...
9 Months Ago
In one of the cochlear implant forums recently I've detected people's fears about having a cochlear implant.  So I shared my beliefs regarding...
10 Months Ago
Yesterday I saw my cochlear implant audiologist for a mapping. I was so excited to share with her all of the improvements I've been experiencing in the...
10 Months Ago
5 months into my new ear's ci journey and I discovered something new last night. I was doing my "music therapy" with my new ear only by...
10 Months Ago
As I type this, I'm listening to a 60's album with various artists with just my new ear. I haven't listened to this particular album for awhile...
11 Months Ago
Today has truly been one full of joy.  Listening and reading along to the Bible was such a thrill this morning! Then this afternoon, I gave a...
11 Months Ago
THis morning, I got out my Bible and my IPOD and listened and read along to a section of the Bible with just my 4 1/2 mo. old ci ear.  My jaw dropped!...
11 Months Ago
Today I turned on the "musical bells" music box that I have.  I hadn't listened to it in several months as a lot of the music is Christmas...
11 Months Ago
I love Easter! It is a day of great joy in my faith!  At times during the sermon, I would listen with my new ear alone and rejoice as I would understand...
11 Months Ago
I received the "Sound and Way Beyond" software program several days ago.  I'm impressed so far! I think that it has come at just the...
One Year Ago
I love experimenting with my cochlear implants.  I've always been told that I have lots of curiosity! Well, both late last night and now this morning, I've...
One Year Ago
I discovered something very cool yesterday. My husband and I were at a friend's maple syrup(ah, the aroma was wonderful!) production facility and my husband...
One Year Ago
I had my 3 month ci appointment this week and it went very well. My ci audiologist was very pleased witih my progress.  My mapping showed that my range had...
One Year Ago
Today marks 3 months since I was activated to my new ear-when I officially began hearing bilaterally. This has been quite the journey so far with this...
One Year Ago
I went on a short one day trip to visit a dear cochlear implant friend and her husband.  Although my friend and I talk on the phone a lot, I had not seen...
One Year Ago
One of the great joys of having a cochlear implant in addition to ease in communication is my ability to enjoy music.  WIth my first implant back in 1989,...
One Year Ago
I love chocolate as do many women.  I allow myself two Dove dark promise chocolates daily as snacks.  Dove promise chocolates always have an inspiration...
One Year Ago
It is now 7 weeks since I was activated to my second ear.  With the ear acting more like a pre-lingually deaf ear, progress has been slow.  Even though I...
One Year Ago
I'm full of joy today! I got a wonderful surprise today when I heard 4 beeps indicating that the battery in my new ear was going dead.  A first for this...
One Year Ago
My January 9, 2009 appointment with my ci audiologist went well.  Even the snowy weather wasn't as bad as had been predicted, which allowed me to go to Ann...
One Year Ago
I'm delighted to report that my "buzzy" new ear has improved even more in the past 4 days. I've been able to increase the volumes in my program slots and am...
One Year Ago
Finally in the past 3 days, my brain and cochlear implant have been able to tolerate longer and longer hours of auditory stimulation and keep the speech...
One Year Ago
On Dec. 22, I went in to see my ci audiologist for my 10 day post activation mapping.   My audiologist was happy with the progress I had made in being able...
One Year Ago
I've had people both hearing and deaf ask me how I can be so patient with an ear that is just "feeling/humming" and not hearing.  They think it is my being...
One Year Ago
It is now 5 days post activation and my new ear has had 5 days of stimulation after 54 years of silence and no stimulation.  I rejoice! Each day I'm able...
One Year Ago
Today is day 2 of my activation.  Yesterday after leaving my audiologist's office, I worked with the new ci by slowly increasing the volume in programs...
One Year Ago
 Today I was activated to my new ear.  It was an interesting experience.  I knew going into activation that given the fact that the ear had been deaf for...
One Year Ago
It is now 8 days until activation.   Today I received an email from my audiologist asking me for my Freedom processor and coil/cable color choices.  It...
One Year Ago
I am a farm wife and yesterday I had a booth at a local community Holiday Bazaar where I sold our apple cider.  My booth has been fairly close to the main...
One Year Ago
This afternoon, my sister-in-law helped me to remove my head bandage. I needed her help as I couldn't see how to take it off without my glasses on and...
One Year Ago
I feel so blessed. My bilateral surgery at Univ. of Mi. East Ann Arbor Surgery Center went beautifully.  They called my name early, shortly after I arrived....
One Year Ago
Today I found out from the hospital that I need to report to the outpatient surgery center at noon on Wed. and that my surgery is scheduled for 1p.m.   I'm...
One Year Ago
Today marks one week until I have ci surgery in my left ear which will make me bilateral.  Yesterday I had my pre-op workup, which went well.  It is hard...
One Year Ago
Today marks 4 weeks until my Nov. 5th ci surgery on my left ear, which will make me bilateral.  I'm definitely dreaming big!  Today while...
One Year Ago
I received a letter from my ci center, Univ. of Mi with my activation dates of Dec. 11 & 12 today!  Seeing the word activation dates had me smiling...
One Year Ago
It is with a sense of relief, joy, a little bit of anxiety, and lots of prayers of thanksgiving that I can now say that I'm on my way to becoming...
One Year Ago
As usual, this ci journey of hoping to become bilateral, I'm learning or trying anyway to have improved patience. It is one week until I see the ci...
One Year Ago
Hi- What a joyful last couple of days. Saturday, I received that long waited medical insurance approval.  Today I received the date of July 29 for the...
One Year Ago
Earlier this week, I received a phone call from my medical insurance contact saying that I've received approval for ci surgery to become bilateral and...
One Year Ago
I' fell like I'm in medical insurance limbo. Two weeks ago, I received a call that my case was under a review:one person said I would know that week...
One Year Ago
Here it is June 24, 2008 and I've yet to hear from insurance for approval to become bilateral.  Granted, there was a glitch and in early June after...
One Year Ago
I had my left ear evaluation a little over two weeks ago.  I was delighted that my ci audiologist feels that I would be a good candidate.  Although...
2 Years Ago
Hi! This week I got in touch with my ci audiologist to see about becoming bilateral.  I would like to hear better in noise(especially when I'm with...
2 Years Ago
I'm still on cloud 9.  Our son and his wife had their second child, a little girl named Gretchen Lydia Klug on Sunday Dec. 23.  What a precious...
2 Years Ago
I am interested in finding out about bilateral cochlear implants, especially how people who have been sequentially implanted years after having received...
2 Years Ago
I truly feel blessed with my cochlear implant. At present I am a unilateral N24 ci user with a Freedom speech processor. I am a ci old timer at 18 years and...
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